Resources for the St. Louis / Midwest Region

Don’t Know Where to Start?

We can help you find the resources that fit your needs. To get connected with medical and community resources for Long COVID in the St. Louis area, contact:

Integrated Health Network
Community Referral Coordinator

Joyce Driver
(314) 571-0874
jdriver@stlouisihn.org

Washington University
Community Referral Coordinator

Rania Abboud
314-514-3572 
 monla@wustl.edu

For Patients

Long COVID refers to persistent symptoms that last more than 12 weeks following a COVID-19 infection, impacting various systems such as the heart, lungs, brain, and energy levels. Protecting yourself involves staying up-to-date with COVID-19 vaccinations and consulting your doctor if you recently had COVID. Medications such as metformin, antivirals, and others may reduce the risk of Long COVID if taken during the initial infection period. Check out our Long COVID flyer for information and preventative tips.
Downloadable Flyer: Official definition of Long COVID and important facts

Talk to your primary care doctor

  • Your primary care doctor can start the diagnosis and treatment process.
  • Prepare for your visit: Beforeduring, and after
  • When needed, your primary care doctor can refer you to more resources for Long COVID medical care.

If you don’t have a primary care doctor (or don’t have health insurance), we are here to help.

When needed, your primary care doctor may refer you to:

Visit the Long COVID Information Service if you would like to print helpful worksheets, learn about ways a loved one can support you, or read more about scientific findings.

Resource navigators

Self-management tools

Long COVID peer support

Legal

Transportation

Primary medical care

Mental health support

Health insurance

Applying for disability

Food

Housing

Utility bills

Clothing (including work attire)

Work

Caregiving of children

General wellness

These local research studies are enrolling participants:

  • RECOVER-VITAL: Testing a medication (Paxlovid) to improve general Long COVID symptoms
  • RECOVER-AUTONOMIC: Testing a medication (Ivabradine) to improve POTS symptoms like fast heart rate, dizziness, and fatigue from Long COVID
  • Long COVID study for brain fog: Testing a medication (fluvoxamine) to improve brain fog symptoms
  • Smell Distortion: Testing an office-based procedure to improve sense of smell
  • Community “pulse check”: Complete a survey about your Long COVID symptoms and needs to help shape resource development. Contact ORTHO-LongCovidSTL@email.wustl.edu for more information.

For Clinicians

Affinia Healthcare Long COVID clinic

Consultation service for the diagnostic workup and management for patients with suspected Long COVID

  • Referral should include the following medical records, as available:
    • History of present illness, including symptoms attributed to Long COVID
    • Any diagnostic work-up already performed, including labs and imaging
    • Documentation of COVID infection at least 3 months prior (either by laboratory evidence or clinical suspicion)
  • Appointment format: Individual, in-person for initial visit; in-person or virtual for follow-up

Referral instructions

  • Referrals from Affinia primary care teams:
    1. In NextGen EMR, please message Catherine Moore directly with all referral information as above, AND/OR schedule directly into the “Long COVID” schedule (currently the 3rd Wednesday morning of each month)
  • Referrals from outside the Affinia network:
    1. Referrals from outside the Affinia network are limited to exceptions.
    2. Have the patient call 314-814-8700 to request a new PCP appointment with Dr. Catherine Moore (at Affinia’s 4414 North Florissant location). Here, the patient will have an initial visit and be assessed for eligibility, and then they will subsequently be scheduled for a Long COVID intake appointment.
    3. Please fax the patient’s face sheet/demographics and relevant medical records with all referral information as above to 314-898-1688, “Attn: Long COVID Clinic.”
    4. Most forms of insurance are accepted. There is a sliding scale fee available for those without insurance.

Washington University Long COVID clinic

Consultation service for the diagnostic workup and subspecialty treatment referrals for patients with suspected Long COVID

  • Referral from a primary care provider should include the following medical records:
    • History of present illness, including symptoms attributed to Long COVID
    • Any diagnostic work-up already performed, including labs and imaging
    • Documentation of COVID infection at least 3 months prior (either by laboratory evidence or clinical suspicion)
  • Appointment format options: Individual, in-person or virtual

Referral instructions

  • Referrals from WU-affiliated providers:
    1. In Epic, order “Amb referral to Infectious Disease”
    2. To provider: “Sarah Alleman,” “Gayathri Krishnan,” or “Michael J Hendrix”
    3. Comments: “Long COVID,” and list the major symptoms requiring evaluation (e.g., fatigue, brain fog, diarrhea, skin rash, fever, etc.)
  • Referrals from outside the WU network:
    1. Fax the patient’s face sheet and relevant office notes (including SARS-CoV-2 test result and/or documentation of rationale for suspected Long COVID diagnosis) to 855-202-2372.
    2. Call 314-273-3300 with questions.

Washington University Occupational Therapy

Individualized one-on-one treatments focused on activity planning and modification, stress management and energy conservation, mental fatigue reduction, and mindfulness strategies

  • Appointment format: Individual, in-person (including home therapy)

Referral instructions

  • Referrals from WU-affiliated providers:
    1. If return-to-work is a primary concern, patient needs to be seen in the home setting, and/or no physical or speech therapy is needed:
      • In Epic, order “Amb referral to Occupational Therapy”
      • Class: “Internal Referral”
      • To loc/pos: “WUSM OT 4444”
      • To dept: “WU OT 4444FP”
    2. If physical and/or speech therapy referrals are also being placed:
      • In Epic, order “Amb referral to WUSM 4240 DUNCAN PT, OT, SLP”
      • PT, OT, and SLP orders will auto-populate. De-select services that aren’t needed.
  • Referral from outside the WU network:
    1. If return-to-work is a primary concern, patient needs to be seen in the home setting, and/or no physical or speech therapy is needed:
      • Fax completed referral form and any relevant medical documentation to 314-289-6131.
      • Call 314-286-1669 or e-mail OTClinical@wustl.edu with questions.
    2. If physical and/or speech therapy referrals are also being placed:
      • Fax the referral for the needed services to 314-286-1473.
      • Call 314-286-1940 with questions.

Washington University Physical Therapy

Individualized one-on-one treatments focused on decreased activity tolerance, fatigue, dizziness, and other mobility impairments

  • Appointment format: Individual, in-person

Referral instructions

  • Referrals from WU-affiliated providers:
    1. In Epic, order “Amb referral to WUSM 4240 DUNCAN PT, OT, SLP”
    2. PT, OT, and SLP orders will auto-populate. De-select any services that aren’t needed.
  • Referral from outside the WU network:
    1. Fax the referral for the needed services to 314-286-1473.
    2. Call 314-286-1940 with questions.

Washington University Speech Therapy

Individualized one-on-one treatments focused on brain fog / cognitive dysfunction and mental fatigue

  • Appointment format: Individual, in-person

Referral instructions

  • Referrals from WU-affiliated providers:
    1. In Epic, order “Amb referral to WUSM 4240 DUNCAN PT, OT, SLP”
    2. PT, OT, and SLP orders will auto-populate. De-select any services that aren’t needed.
  • Referral from outside the WU network:
    1. Fax the referral for the needed services to 314-286-1473.
    2. Call 314-286-1940 with questions.

Washington University Living Well Center

  • Behavioral health counseling for Long COVID (financial assistance may be available)
  • Education in lifestyle strategies to manage and improve Long COVID symptoms
    • Does not include diagnostic workup or further testing for Long COVID
    • Appointment format options: Group and individual, in-person and virtual
  • Group (Shared Medical) Appointments for physical, occupational & speech therapy principles
    • Covered by Medicaid and other insurers as a routine office visit
    • (Coming Summer 2024)

Referral instructions

  • Referrals from WU-affiliated providers:
    1. In Epic, order “Amb referral to Living Well Center”
    2. Purpose for referral: “Provider consult” if unsure or if multiple services requested.
    3. To provider: “Sara Kellahan” or leave blank
  • Referral from outside the WU network:
    1. Fax the patient’s face sheet and relevant office notes to 314-996-8132.
    2. Call 314-514-3565 with questions.

Need a paper copy?

  • Click here to view and download referral processes as a PDF
  • Contact us to recommend additions or updates to this roster, or to request notifications when major updates in evidence and/or resources are released

Diagnostic tools

Management tools

These local research studies are enrolling participants:

  • RECOVER-VITAL: Testing a medication (Paxlovid) to improve general Long COVID symptoms
  • RECOVER-AUTONOMIC: Testing a medication (Ivabradine) to improve POTS symptoms like fast heart rate, dizziness, and fatigue from Long COVID
  • Long COVID study for brain fog: Testing a medication (fluvoxamine) to improve brain fog symptoms
  • Smell Distortion: Testing an office-based procedure to improve sense of smell
  • Community “pulse check”: Complete a survey about your Long COVID symptoms and needs to help shape resource development. Contact ORTHO-LongCovidSTL@email.wustl.edu for more information.

Links to resources and clinics are for informational purposes and do not imply endorsement by the St. Louis Integrated Health Network or our partners, nor discrimination against similar resources or organizations not mentioned.

Last Updated: March 15, 2024
Supported by: Grant U18HS029911